Hero's Wall

Hero’s Wall is a heartfelt tribute to real-life heroes—patients, families, and loved ones—who have shown extraordinary courage in the face of rare diseases. This wall is dedicated to honoring their strength, resilience, and stories, while also offering support and understanding to those who continue the fight today.

If you would like to share your own journey, we would be honored to include your story. The Hero’s Wall is a space where every voice matters, and you are warmly welcomed here.

Viktor

Viktor has been diagnosed with Aarskog Disease. He has been fighting this disease since birth. Click on this link to read more about the physical and psychological struggles Viktor has bravely faced. (My Aarskog Journey, n.d.)

Resources

My Aarskog journey. (n.d.). Rare Disease Day 2023. https://www.rarediseaseday.org/heroes/my-aarskog-journey/