How do we work?

Resources & Action

Our hub includes links to reputable sources for learning more about specific rare conditions. Every click, share, and contribution helps drive change.

We share knowledge about rare diseases through clear, accessible content. From overviews of specific conditions to explanations of their psychological impact, we aim to make complex topics understandable for everyone. Our Video of the Week highlights thought-provoking talks and documentaries that help you see these experiences from new perspectives.

Unseen Battles Hub is a platform dedicated to shining a light on rare diseases—both the physical realities and the emotional challenges that often go unseen. Our mission is to raise awareness, inspire empathy, and encourage tangible action to support those living with rare conditions and their loved ones.

Unseen Battles Hub exists to transform awareness into compassion, and compassion into impact. Whether you’re here to learn, to share your story, or to support the cause, you’re part of a growing community committed to making life better for those living with rare diseases. Together, we can make these unseen battles visible.

Awareness & Education

Our Founder

Ela

With a background in molecular biology and genetics, and shaped by a commitment to expanding scientific access and education, Ela engages in cutting-edge research on stem cells, spectroscopy, and rare diseases while building connections across academia, healthcare, and the community.

“The real voyage of discovery consists not in seeking new landscapes, but in having new eyes.”

– Marcel Proust